This resource list can be beneficial for caregivers when they need to reach out to an organization that specializes in their patients type of cancer or illness. Many of these organizations also have websites that you can find with a simple internet search to have even more information at your fingertips.
If you would like to be added to our resource list, please contact us through our website with your organizations’ details and information.
| Organization and Website link | Telephone |
| Alzheimer’s Association | 800-272-3900 |
| American Cancer Society | 800-227-2345 |
| American Diabetes Association | 800-342-2382 |
| American Heart Association | 800-242-8721 |
| American Liver Foundation | 212-668-1000 |
| American Lung Association | 800-548-8252 |
| American Parkinson Disease Association | 800-225-2732 |
|
Amyotrophic Lateral Sclerosis Association (Lou Gehrig’s Disease) |
800-782-4747 |
| Asbestos.com | 855-960-0563 |
|
Cancer Information Service (division of National Institutes of Health) |
800-422-6237 |
| Cystic Fibrosis Foundation | 800-344-4823 |
|
Depression – Secure Horizons (division of the National Institute of Mental Health) |
800-421-4211 |
|
HIV/AIDS Treatment Information Service (division of National Institutes of Health) |
800-448-0440 |
| Huntington’s Disease Society of America | 800-345-4372 |
| Leukemia & Lymphoma Society | 800-955-4572 |
| Lupus Foundation | 800-558-0121 |
|
Medic Alert Foundation International (registration for illness/medication and location using identification jewelry and/or cards) |
800-633-4298 |
|
Medicaid (Federal agency) Medicaid programs are run by the state and regulations vary state to state. Check state agencies as well. |
|
|
Medicare and Medicare Hotline (federal hotline) |
800-638-4277 |
|
Medigap Hotline (Federal hotline) |
800-638-6833 |
|
Medline Plus (Federal; general information on medical issues) |
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| Muscular Dystrophy Association | 800-572-1717 |
|
National Cancer Institute (division of National Institutes of Health) |
800-422-6237 |
|
National Institute of Diabetes & Digestive & Kidney Diseases (division of National Institutes of Health) |
301-496-3583 |
|
National Institutes of Health (Federal agency) |
301-496-4000
(800) 484-0316 |
| National Kidney Foundation | 800-622-9010 |
| National Mental Health Association | 800-969-6642 |
| National Multiple Sclerosis Society | 800-344-4867 |
| National Osteoporosis Foundation | 800-223-9994 |
| National Parkinson’s Foundation | 800-327-4545 |
| National Stroke Association | 800-787-6537 |
|
Project Lifesaver International (information on radio frequency location devices for wanderers; information on local participants) |
877-580-5433 |
| SeniorCare.com | Visit Website
800-421-8453 |
| Social Security Administration | 800-772-1213 |
| Spina Bifida Association of America | 800-621-3141 |
| Stroke Connection, American Heart Association | 800-553-6321 |
|
United Cerebral Palsy Association
UT Austin Boot Camps (Mental Health Options) Caregiver’s Guide to Alzheimer’s Disease – A Guide to Exercise for Seniors – |
800-872-5827
512-387-5789 (see online resource) Sleepopolis (online resource) Online resource for locating drug and alcohol rehabs. Links to Fort Wayne, IN- but can search in other states. Mattress Clarity offers a guide for senior exercise. – |
Resources Used:
ACS
NIH
Reclaiming Intimacy
Caregivers Network
& information is collected directly from organizations and their representatives that reach out to Reclaiming Intimacy to be added to this ever-growing resource list.