Resources for Caregivers 

This resource list can be beneficial for caregivers when they need to reach out to an organization that specializes in their patients type of cancer or illness. Many of these organizations also have websites that you can find with a simple internet search to have even more information at your fingertips.

If you would like to be added to our resource list, please contact us through our website with your organizations’ details and information.

Organization and Website link Telephone
Alzheimer’s Association 800-272-3900
American Cancer Society 800-227-2345
American Diabetes Association 800-342-2382
American Heart Association 800-242-8721
American Liver Foundation 212-668-1000
American Lung Association 800-548-8252
American Parkinson Disease Association 800-225-2732
Amyotrophic Lateral Sclerosis Association
(Lou Gehrig’s Disease)
800-782-4747 855-960-0563
Cancer Information Service
(division of National Institutes of Health)
Cystic Fibrosis Foundation 800-344-4823
Depression – Secure Horizons
(division of the National Institute of Mental Health)
HIV/AIDS Treatment Information Service
(division of National Institutes of Health)
Huntington’s Disease Society of America 800-345-4372
Leukemia & Lymphoma Society 800-955-4572
Lupus Foundation 800-558-0121
Medic Alert Foundation International
(registration for illness/medication and location using identification jewelry and/or cards)
(Federal agency) Medicaid programs are run by the state and regulations vary state to state. Check state agencies as well.
Medicare and Medicare Hotline
(federal hotline)
Medigap Hotline
(Federal hotline)
Medline Plus
(Federal; general information on medical issues)
Muscular Dystrophy Association 800-572-1717
National Cancer Institute
(division of National Institutes of Health)
National Institute of Diabetes & Digestive & Kidney Diseases
(division of National Institutes of Health)
National Institutes of Health
(Federal agency)

Nursing Home Abuse Justice


(800) 484-0316

National Kidney Foundation 800-622-9010
National Mental Health Association 800-969-6642
National Multiple Sclerosis Society 800-344-4867
National Osteoporosis Foundation 800-223-9994
National Parkinson’s Foundation 800-327-4545
National Stroke Association 800-787-6537
Project Lifesaver International
(information on radio frequency location devices for wanderers; information on local participants)

Sickle Cell Association of America

Visit Website


Social Security Administration 800-772-1213
Spina Bifida Association of America 800-621-3141
Stroke Connection, American Heart Association 800-553-6321
United Cerebral Palsy Association

UT Austin Boot Camps (Mental Health Options)

Disaster Preparedness Guide

Caregiver’s Guide to Alzheimer’s Disease

A Guide to Exercise for Seniors



(see online resource)

Sleepopolis (online resource)

Online resource for locating drug and alcohol rehabs. Links to Fort Wayne, IN- but can search in other states.

Mattress Clarity offers a guide for senior exercise.

Resources Used:



Reclaiming Intimacy

Caregivers Network

& information is collected directly from organizations and their representatives that reach out to Reclaiming Intimacy to be added to this ever-growing resource list.

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